Your Experience with ATTRv Matters

This site is intended for patients in the UK who are diagnosed with hereditary transthyretin amyloidosis (ATTRv), which runs in families.

Amyloidosis UK, Cardiomyopathy UK, and Pumping Marvellous Foundation have provided feedback on the ATTR-AWARE study. The study is designed and funded by AstraZeneca UK, who have no involvement in patient selection. It is conducted by IQVIA on behalf of AstraZeneca.

Are you living with hereditary transthyretin amyloidosis (ATTRv)? Your voice matters. AstraZeneca UK is currently conducting a scientific study to better understand the experiences of individuals with ATTRv, and we’re hoping you would like to be part of this important initiative. By participating, you’ll have the opportunity to share your personal insights while helping to raise awareness about the condition. You’ll help us understand what daily life is like with ATTRv, the challenges you face, and your views on treatment and NHS care. Sharing your story through surveys/interviews will also shape future support for people with ATTRv. Please note that AstraZeneca will not be involved in patient selection or have any direct interaction with patients within the scope of this study.

What's Involved?

• A 30-minute online survey – Share your experience.
• An optional 60-minute follow-up phone interview – Go deeper into your story.

Please note: Only a select group of survey respondents will be invited for the phone interview, and participation is completely voluntary.

You are very welcome to share this invitation with a family member or friend who has ATTRv. If you have any questions about the study, please reach out by e-mail to attr_awareUK@iqvia.com.

Please sign up if you are…

• …diagnosed with hereditary transthyretin amyloidosis (ATTRv) by a doctor…
• …aged 18 years and older and …
• …a resident of United Kingdom (Great Britain and Northern Ireland)

Compensation

You will be compensated for your time: we offer £40 for completing the 30-min online survey and £50 for participating in the optional 60-min follow-up phone interview.

Incentives are paid as vouchers, redeemable at 160+ retailers, including Airbnb, Costa, Sainsbury's, Tesco, Just Eat, and many more.

How do I sign up?

Please enter your contact information below to register for the study and get a personal survey link sent to you:

Please click ‘Submit’ to sign up.

Privacy Notice and Consent

By submitting your email address, you sign up to receive an invitation to a scientific study focused on ATTRv. Your email will be used solely to contact you about this study and related updates.

We are committed to protecting your privacy. Your personal data will be stored securely and processed in accordance with the EU General Data Protection Regulation (GDPR) and applicable local laws. You may withdraw your consent at any time by contacting us at attr_awareUK@iqvia.com.