Thank you for your interest in this study. The purpose of this research is to better understand what it is like to live with ALS and how ALS affects people's daily lives. This research is being conducted by IQVIA™ on behalf of the study sponsor, the Critical Path Institute (C-Path). We will be asking you some questions to see if you are eligible to participate. Individuals who meet the eligibility criteria may be asked to take part in online interviews.

Any information you provide to us as part of the eligibility questions will be treated as confidential. Information that directly identifies you, such as your name, contact information, and location, will be kept separate from your screening form and interview responses. Your identifying information will not be shared with any other organization without your permission. Any information that could identify you will be stored securely and retained in accordance with applicable regulations and study policies. Information that directly identifies you will be destroyed five years after the study is completed.

Information that does not directly identify you (often called "de-identified data"), such as your responses to the eligibility questions, demographic information, and other study-related information, may be shared with the study sponsor, C-Path, and other approved research partners. De-identified information may be combined with information from other participants, stored in secure databases, and used for future research purposes. Neither C-Path nor future researchers will receive information that directly identifies you. Deidentified study data, which cannot reasonably be linked back to you, may be retained by IQVIA for up to 15 years after study completion. C-Path may retain copies of de-identified study data for longer periods, including for future research use. De-identified study data, which cannot be linked back to you, will will be retained for up to 15 years after study completion. De-identified data may be kept by the study sponsor indefinitely (for a time that is not yet set).

If you are eligible to take part in the interview, you will be provided with a consent form, which explains how the study works and your rights as a study participant.

You have the right to withdraw at any time. For more information about your rights, please see our privacy notice, which is available at www.iqvia.com/about-us/privacy.

If you have any questions, please contact the study team at ALS_interviews@iqvia.com.

Do you consent to the information above and wish to proceed to see if you are eligible for this study?